Nathanael is diagnosed with "Infantile Spasm".
Nathanael Lee was born on 22 September 2004. He had a normal birth and was deemed healthy and normal. [at Damansara Specialist Centre]
On his third day of life, he was admitted back into hospital due to jaundice, whilst under observation, our pediatrician (Datin Dr Vasantha) discovered that he had low sugar levels (hypoglyciema)
After a week in hospital, our doctor found that his sugar level was ok, and the jaundice had subsided, and Nathanael was discharged from the hospital.
On our follow up visits (both Nathanael’s third & fourth month) with our pediatrician, Dr Vasantha started to notice that his development skills were slightly slower, and she asked us to seek for a 2nd opinion.
On the fifth month we visited a Pediatrician Neurologist (Dr Malinee) at Pantai Hospital who during consultation noticed that Nathanael was having seizures. She immediately asked us to admit him and informed us that she will be doing tests on him. [Read more on the Tests]
There were many tests done, EEG (ElectroEncephaloGram) , MRI Scans (Magnetic Resonance Imaging) , VEP(Vision Exposed Potential) , EVP, Xray, ECG (ElectroCardioGram), Lumbar Puncture, Eye & Ear Tests, Blood Tests, Metabolic test and some others.
At this juncture, that Dr Malinee diagnosed Nathanael with "Infantile Spasm". /West Syndrome (Form of Epilepsy). She also had a visiting consultant (Dr Choy Yew Sing of General Hospital KL) to join her on Nathanael’s diagnose.
After all test results were back, we switched to a Government Hospital and was refereed to Prof Ong Lai Choo of Hospital UKM.
From mid 2005 until present, we have been consulted by both Prof Ong Lai Choo. She is now looking into Nathanael’s situation.
Nathanael is currently on two anti epileptic (anti convulsant) drugs, Frisium (Clobazam) and Epilim (Sodium Valproate) and undergoing physio therapy, occupational therapy, speech therapy, hyrdo therapy, early intervention classes at HUKM, Spastic Centre and Bridges.
You can view the records of his Seizures in the Fits Diary section.
UPDATE March 2006
UPDATE September 2006
Nathanael started on the Ketogenic Diet at the Hospital Kuala Lumpur, under the care of Dr Choy Yew Sing (Metabolic / Genetic Specialist) and Puan Mariam (Dietitian). We are currently still observing the progress of the Ketogenic Diet in Nathanael. Nathanael was admited into the hospital for 9 days. To view the daily progres, click on the links below.
UPDATE October 2006
Nathanael has started to go to School. Yes a School, called Bridges which has a program for Early Intervention for Children. Its a once a week visit to Bridges with a one to one teacher. Teacher Dolly is Nathanael's teacher.
UPDATE January 2007
Nathanael is Seizure Free !!! Praise GOD!!!! After starting on the Ketogenic Diet in September, we ran an EEG - ElectroEncephaloGram test in December and we managed to get a report from the Doctors. The EEG report declares that Nathanael is Seizure Free!
We thank GOD for this miraculous healing, and now we need to continue to work on his on-going Development. Thank you for your prayers and support, and continue to pray along.
We are thankful for what God is doing in Nathanael as we see Nathanael improving each day.
Nathanael’s Panel of Doctors
With much appreciation to the Medical Caregivers below
Datin Vasantha Matthews - Child Pediatrician
Prof Ong Lai Choo - Child Neurology
Dr Choy Yew Sing - Genetics & Metabolics
Datin Teoh Su Lin - Ophthalmologist
Dr Joseph Alagaratnam - Ophthalmologist
Dr Cila Umat - Audiologist
Dr Loganathan - ENT Specialist
Pn Mariam - Dietician
Physio & Hyrdo Therapy (HUKM) - Yoke Fong
Occupational Therapy - Ms Teo
Prof C T Lim - Neonatologist
Dr Malinee Thambayah - Child Neurologist
Dr Vigneshwary - Child Neurologist
[tags : darentiff nathanael therapy seizures infantilespasm bridges hukm spasticcentre epilepsy doctor]