dareNtiff

This Week at HUKM Nathanael redid his EEG Test. Doc said it would be better to retake his EEG after at least two months into the Ketogenic Diet. Pray along with us as we wait for the results of this EEG. [tags : darentiff nathanael ketones epilepsy seizures diet ketogenic diet ]

God is so good! Its amazing and termendous change, after tracking countless number of seizures that Nathanael had experienced since February 2005, and on his 16th day of the Ketogenic Diet, we stopped seeing any physical seizures in Nathanael. Its really All Glory To God for that amazing change in Nathanael's life. If we were to count all the seizures that has been recorded, we see a total of 22,629 seizures in a period of 21 months of 1,078 seizures in a month or an average of 36 seizures a day!!! Poor Nathanael, having gone through so much in the first two years of his life on earth. Rejoice with us as we expect new changes and exciting things to start happening in Nathanael's life. We are now working on his muscle tone and his gross and fine motor development via therapy sessions and exercises. Continue to pray for Nathanel, that he will pick up and learn quickly. What a Blessing! We have recently gone to re-do his EEG (ElectroEncephaloGram) on 6 October, and we hope to see...

In the late afternoon today, we also did another EEG (ElectroEncephaloGram) scan for Nathanael. (We think, this may be the fifth EEG he has done) Thankfully Nathanael was sleeping well, so they didnt need to sedate him. We carried him down from his Ward to the EEG room, the person in charge put up all the lines, and carried out his EEG tests. This is the computer that tracks the read out from the brain activity. It measures the signals in a form of curves. All these wires are put in strategic area around his head and also his chest. This is to measure the activity of brain neurons that's moving thru his brain. We won't get the results yet as it would take some time for them to study the graphs and all. [tags : darentiff nathanael ketogenic ketones epilepsy seizures diet ketogenic diet ]

Dear all Just wanted to ask u guys to keep praying along for Nathanael. Some of u know that he was up in Penang for a Video EEG this week with Dr Vicky of the Penang Hospital Besar. She's a specialist for Children with Epilepsy. (or also known as an Epileptologist) The news wasn't that good Anyway... from the Video EEG done a day ago, this was her dianogsis of Nathanel. Doc said that the situation is the worst of worst case for Nathanael. From the Video EEG, it shows that he is having fits 99% of the time. The times when he is happiest most - smiling, chatting, talking-babbling and moving lots..that's when the fits are non evident. But each time when he's quiet or staring.... that's when the fits are taking place. This wasn't what we were expecting, cos we saw the physical count of fits drop from 700+ in Jan to 400+ in Feb. Doc said that are lots of fits that can be occuring in the brain that is not physically seen. Anyway... doc said that we need to increase th...