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Showing posts from March, 2006

Nathanael @ HUKM for IV Methylprednisolone

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Nathanael is admited to HUKM from 30 March - 1 April. He will be undergoing the IV Methylprednisolone (Steroid) procedure. We are hoping that this will help stop Nathanael's seizures. Both of Nathanael legs (toes rather) have been used. The right toe is where the intravaneous Methylprednisolone is done and the left toe is where they are measuring his heart beat and pulse. Please pray along that it will all go well. We are uncertain if it will work, but we are giving it a try. Read some of the emails that we sent out the past few days and check out the photos and videos of Nathanael in HUKM. Nathanael @ HUKM Update Dear all Here's a short MMS message from Tiff Line is in. We are in the Peads Ward. Starting drip steroids at 2pm and will be on it until midnight. We are doing good. Nathanael is very active, kicking away. Blessings Daren & Tiff

Nathanael's Methylprednisolone procedure @ HUKM

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Dear Family & Friends We just returned from our follow up visit with Prof Ong (Peads Neurologist) in HUKM today (29 Mar). She has strongly advised us to start Nathanael on the IV Methylprednisolone (Steroids) ASAP. (her actual words - "aggressively start") IV Methylprednisolone Possible Side Effects a) Zero Immunity b) High Blood Pressure c) Glucose Urea Therefore Nathanael has been scheduled to be admitted tomorrow (30 Mar) and will be in HUKM for the next few days. (30th March-1st April) There is no guarantee that this treatment would help but we MUST try. Please keep us in prayers as we take this step of faith. Thank you for always keeping us in your prayers, we really appreciate it. Blessings Daren & Tiffany p/s :- After this treatment Nathanael will be homebound for about 2 weeks.

Nathanael's Update from his Video EEG

Dear all Just wanted to ask u guys to keep praying along for Nathanael. Some of u know that he was up in Penang for a Video EEG this week with Dr Vicky of the Penang Hospital Besar. She's a specialist for Children with Epilepsy. (or also known as an Epileptologist) The news wasn't that good Anyway... from the Video EEG done a day ago, this was her dianogsis of Nathanel. Doc said that the situation is the worst of worst case for Nathanael. From the Video EEG, it shows that he is having fits 99% of the time. The times when he is happiest most - smiling, chatting, talking-babbling and moving lots..that's when the fits are non evident. But each time when he's quiet or staring.... that's when the fits are taking place. This wasn't what we were expecting, cos we saw the physical count of fits drop from 700+ in Jan to 400+ in Feb. Doc said that are lots of fits that can be occuring in the brain that is not physically seen. Anyway... doc said that we need to increase th...