dareNtiff

Good News! Great News! No more medicine! YAY! Both of Nathanael's doctors (Prof Ong & Dr Choy) has now recommended that we begin weaning off Nathanael's medication. Currently he is on Epilim 200mg BD and a Co-Factor called Carnitine.The entire process will take 3-4months. This is a crucial step we are taking. It's a BIG step of FAITH! We will have to monitor him closely. Please continue to pray cos we will need all the prayers from U guys. As most of you who has been following Nathanael's journey will know that he has been placed under this special treatment called Ketogenic Diet for almost a year now. He will be on it till 2009. We wanna thank God that Nathanael has showing tremendous improvements! We're so thankful. Each day he is so amazingly different. Each day is better! GOD is GOOD! To all the parents out there whose child is on this diet.....we know it is not easy but PRESS ON -keep on persevering ya! Dun give up. Feel free to call or mail us. We would l...

Amazing ... 200 days have come and gone and Nathanael is doing well on his Ketogenic Diet . In fact Nathanael looks forward to his meal periods and thru his Meal periods he actually is motivated to " work " to get his food. Initially ( September 2006 ) when we started on the Ketogenic Diet we were apprehensive. Afterall we have tried so many things. So so so so many things to try and help control the seizures in Nathanael. Not knowing that as we were reaching the end of our rope of Options in dealing with Nathanael's seizures, the Ketogenic Diet worked! Nathanael is Seizure Free !!! We must add, that after reading tons of information, books, documentation of the Ketogenic Diet, that there was only a 20% working chance that the Diet would work on a child. Given the odds, we feel that it not by chance, nor by probability, but it is indeed a Mircale of God in Nathanael's life! Since the stop of Nathanel's seizures in October, we have seen him achieve his Milestone...

We will be starting Nathanael on the Ketogenic Diet sometime by end September. We will be going to the General Hospital Kuala Lumpur (GHKL) or as some has aptly corrected us its now known as the Hospital Kuala Lumpur (HKL) [apparently its not that General anymore] We are awaiting for the confirmation dates from both the Dietian and Metabolic Doctor on the dates and Nathanael will have to hospitalized for this procedure to take place. Unlike what we normally know as a "diet", this is not just an abstinence of food, but a mathematically calculated diet done at all times to ensure that the correct amount and correct type of food is given to Nathanael. Can u imagine, we can only be one gram off the scale of what we are to feed him. So you can imagine how intense it can be. In future, once we commence the Ketogenic Diet, we cannot just feed him off the table with whatever that we are consuming, we have to be extremely careful. For those of you who want to know more about the Keto...

Many of you are asking us what is this Ketogenic Diet that we are starting for Nathanael, so we have put some documentation together from a book and some internet websites. - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - B R I E F S U M M A R Y The Ketogenic diet is a special diet to help children treat epilepsy seizures/fits. The name ketogenic means that it produces ketones in the body (keto = ketone, genic = producing). Ketones are formed when the body uses fat for its source of energy. Usually the body usually uses carbohydrates (such as sugar, bread, pasta) for its fuel, but because the ketogenic diet is very low in carbohydrates, fats become the primary fuel instead. Ketones are not dangerous. They can be detected in the urine, blood, and breath. Ketones are one of the more likely mechanisms of action of the diet; with higher ketone levels often leading to improved seizure control. The typical ketogenic diet, called the "long-chain trigly...

Nathanael's 2006 Fits Diary Below are a graphical representation of the seizures counted daily from 1 Janauary 2006 to the present month. What happens in a seizure? Excerpt from Epilepsy Canada Special cells called neurons help to form an electrical and chemical network in the brain. Under normal conditions, electrical signals move along these neurons. They influence the release of different chemicals which further influence the electrical activity of subsequent neurons. Many external and internal influences can cause abnormal activities in the electrical signals of these neurons. A change in the regular brain electrical activity may result in a seizure. Repeated seizure events may be a sign of epilepsy. (Note: while all forms of epilepsy are characterised by some form of seizure disorder, not all seizure disorders are indicative of epilepsy.) [tags : darentiff nathanael fitsdiary seizures ]

Nathanael's Medical Condition Nathanael is diagnosed with "Infantile Spasm" . Nathanael Lee was born on 22 September 2004. He had a normal birth and was deemed healthy and normal. [at Damansara Specialist Centre] On his third day of life, he was admitted back into hospital due to jaundice, whilst under observation, our pediatrician (Datin Dr Vasantha) discovered that he had low sugar levels (hypoglyciema) After a week in hospital, our doctor found that his sugar level was ok, and the jaundice had subsided, and Nathanael was discharged from the hospital. On our follow up visits (both Nathanael’s third & fourth month) with our pediatrician, Dr Vasantha started to notice that his development skills were slightly slower, and she asked us to seek for a 2nd opinion. On the fifth month we visited a Pediatrician Neurologist (Dr Malinee) at Pantai Hospital who during consultation noticed that Nathanael was having seizures. She immediately asked us to admit him and informed us ...