Today is Nathanael's first Hydro Therapy session with his HUKM Therapist. He was extremely excited, giggling and kicking in the water non stop. We're glad to see him being so active and excited.
It was actually non stop today, we started in the morning with Physio Therapy at the Spastic Centre then we moved on to Occupational Therapy also at the Spastic Centre. Right after lunch we drove to HUKM and had his Hydro Therapy. Below are two short videos of him in the water with his therapist.
Click on the Links below, or Click Play to watch it on the screen below.
Video1
Video2
Nathanael Lee
Zoe Joy Lee
Sunday, February 12, 2006
Sunday, January 22, 2006
Nathanael is 16 Months Old
We would like to take this opportunity to share two videos with you on Nathanael. Click on the link below to view it.1. Nathanael holding his own Milk Bottle
This is a huge progress. Tiff recorded it after assisting him to put his hands on the Milk Bottle and he held on to it and kept on Drinking! Hallelujah! These are the little steps forward that keep our HOPE in Jesus High!
(This is a small File 1MB taken from a phone)
Video Link
2. Nathanael in Physio Therapy in HUKM
We wanted to share this video with you all because it was such an interesting therapy machine that lifts Nathanael up to a standing position. And wow.. he's really tall! Can't wait till he can walk and hold our hands.
The purpose of the therapy is to put him on a standing position so that his entire weight will fall on his limbs and also help to understand and experience the sense of balance in an upright position.
(This is a huge file = 70MB)
Keep praying along for Nathanael. And unfortunately he's been having cough and cold for almost six weeks now. The last two weeks we've kept him out from the outside world, no malls, no going out only for hosp visits. He's been indoors only and we see that has help somewhat. Anyway.. pray that his flu will go, so that we can start his water therapy with him again. That's been on hold since mid December.
Video Link
Sunday, January 01, 2006
Nathanael's Fits Diary
Nathanael's 2006 Fits Diary
Below are a graphical representation of the seizures
counted daily from 1 Janauary 2006 to the present month.
What happens in a seizure?
Excerpt from Epilepsy Canada
Special cells called neurons help to form an electrical and chemical network in the brain. Under normal conditions, electrical signals move along these neurons. They influence the release of different chemicals which further influence the electrical activity of subsequent neurons. Many external and internal influences can cause abnormal activities in the electrical signals of these neurons. A change in the regular brain electrical activity may result in a seizure. Repeated seizure events may be a sign of epilepsy. (Note: while all forms of epilepsy are characterised by some form of seizure disorder, not all seizure disorders are indicative of epilepsy.)
Thursday, December 22, 2005
Archives of Nathanael 2004 - 2005
Dear friends
Here are the links of Nathanael from 2004 - 2005
Our old webpage is http://www.geocities.com/delephant/
Click on any of the links below to get more information.
» Archive: Month 1 (2004)
» Archive: Month 2 (2004)
» Archive: Christmas (2004)
» Archive: Month 3 (2004)
» Archive: Month 4 (2005)
» Archive: Month 5 (in Pantai Hospital) (2005)
» Archive: Month 6 (2005)
» Archive: Sports Illustrated (2005)
» Archive: Month 7 (2005)
» Archive: Month 8 (2005)
» Archive: Month 10 (2005)
» Archive: Month 12 (1 Years Old) (2005)
Wednesday, February 23, 2005
Nathanael's Medical Condition
Nathanael's Medical Condition
Nathanael is diagnosed with "Infantile Spasm".
Nathanael Lee was born on 22 September 2004. He had a normal birth and was deemed healthy and normal. [at Damansara Specialist Centre]
On his third day of life, he was admitted back into hospital due to jaundice, whilst under observation, our pediatrician (Datin Dr Vasantha) discovered that he had low sugar levels (hypoglyciema)
After a week in hospital, our doctor found that his sugar level was ok, and the jaundice had subsided, and Nathanael was discharged from the hospital.
On our follow up visits (both Nathanael’s third & fourth month) with our pediatrician, Dr Vasantha started to notice that his development skills were slightly slower, and she asked us to seek for a 2nd opinion.
On the fifth month we visited a Pediatrician Neurologist (Dr Malinee) at Pantai Hospital who during consultation noticed that Nathanael was having seizures. She immediately asked us to admit him and informed us that she will be doing tests on him. [Read more on the Tests]
There were many tests done, EEG (ElectroEncephaloGram) , MRI Scans (Magnetic Resonance Imaging) , VEP(Vision Exposed Potential) , EVP, Xray, ECG (ElectroCardioGram), Lumbar Puncture, Eye & Ear Tests, Blood Tests, Metabolic test and some others.
At this juncture, that Dr Malinee diagnosed Nathanael with "Infantile Spasm". /West Syndrome (Form of Epilepsy). She also had a visiting consultant (Dr Choy Yew Sing of General Hospital KL) to join her on Nathanael’s diagnose.
After all test results were back, we switched to a Government Hospital and was refereed to Prof Ong Lai Choo of Hospital UKM.
From mid 2005 until present, we have been consulted by both Prof Ong Lai Choo. She is now looking into Nathanael’s situation.
Nathanael is currently on two anti epileptic (anti convulsant) drugs, Frisium (Clobazam) and Epilim (Sodium Valproate) and undergoing physio therapy, occupational therapy, speech therapy, hyrdo therapy, early intervention classes at HUKM, Spastic Centre and Bridges.
You can view the records of his Seizures in the Fits Diary section.
UPDATE March 2006
Nathanael tried a steroid treatment called IV Methylprednisolone, where he was hospitalized at HUKM for Two days to administer this Treatment. But the Steroids had no effect on Nathanael.
Link1 Link2
UPDATE September 2006
Nathanael started on the Ketogenic Diet at the Hospital Kuala Lumpur, under the care of Dr Choy Yew Sing (Metabolic / Genetic Specialist) and Puan Mariam (Dietitian). We are currently still observing the progress of the Ketogenic Diet in Nathanael. Nathanael was admited into the hospital for 9 days. To view the daily progres, click on the links below.
[Day 1 & Pt2] [Day 2 & Pt2] [Day 3 & Pt2] [Day 4 & Pt2] [Day 5] [Day 8] [Day 9]
UPDATE October 2006
Nathanael has started to go to School. Yes a School, called Bridges which has a program for Early Intervention for Children. Its a once a week visit to Bridges with a one to one teacher. Teacher Dolly is Nathanael's teacher.
UPDATE January 2007
Nathanael is Seizure Free !!! Praise GOD!!!! After starting on the Ketogenic Diet in September, we ran an EEG - ElectroEncephaloGram test in December and we managed to get a report from the Doctors. The EEG report declares that Nathanael is Seizure Free!
We thank GOD for this miraculous healing, and now we need to continue to work on his on-going Development. Thank you for your prayers and support, and continue to pray along.
MILESTONES
Read some of Nathanael's Milestones (Progress Improvements) by clicingk here!
We are thankful for what God is doing in Nathanael as we see Nathanael improving each day.
Nathanael’s Panel of Doctors
With much appreciation to the Medical Caregivers below
Doctor Specialist
Datin Vasantha Matthews - Child Pediatrician
Prof Ong Lai Choo - Child Neurology
Dr Choy Yew Sing - Genetics & Metabolics
Datin Teoh Su Lin - Ophthalmologist
Dr Joseph Alagaratnam - Ophthalmologist
Dr Cila Umat - Audiologist
Dr Loganathan - ENT Specialist
Pn Mariam - Dietician
Therapist
Physio & Hyrdo Therapy (HUKM) - Yoke Fong
Occupational Therapy - Ms Teo
Previously Consulted
Prof C T Lim - Neonatologist
Dr Malinee Thambayah - Child Neurologist
Dr Vigneshwary - Child Neurologist
[tags : darentiff nathanael therapy seizures infantilespasm bridges hukm spasticcentre epilepsy doctor]
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