dareNtiff

YAY!! This is the last nite picture taken at HKL. Here's Nathanael drinking his RCF Milk. Yum Yum. [One Can of *RCF Milk can only be portioned out to 4 drinking periods and it must be consumed within 24 hours of opening the can!!] So Nathanael was discharge from Hospital Kuala Lumpur on Tuesday, 26 September after completing 9 Days in HKL. We completed our "session" with Pn Mariam our Dietian. She carefully explained to us his Menu Meal Plans and how we can prepare the food and how to substitute the foods (so many types of Food .. based on an exhaustive list ...called the Food Exchange). We have to watch out for the Protein Levels, the Carbohyrdate Levels. For Example : If we wanna give Nathanael a slice of Papaya, then we would have to cut his rice for Lunch & Dinner. Cos one slice of Papaya = 4 Tablespoon of Rice - in terms of Carbohydrate levels! So we will have to follow the menu stringently to ensure that Nathanael gets his correct content of Water, Fats, Carbo, ...

Nathanael probably will be discharged by tomorrow (Tuesday). YAY!!!! As everyone might think will be our reaction......... BUT! !!!!! Quite the scarry!! The stress begins for us.....aiyoh! !! We gotta cook & prepare his Ketogenic Meal. No experience no nothing..... ...how leh?? Please please pray for us ya....... in the hospital we just need to feed him and no need to worry about preparation of his food..... but but......from Tuesday evening onwards will be a testing 1,2,3 for us. hehahahhaa........... pls pray for wisdom ya. Some more the meal must be accurate one wor. We have a Electronic Digital scale....... which increases by 1g....actually suppose to use the 0.1g one la.....aiyoh but the price difference.. ....abit high and Dr Choy did say about RM1,000++ .. ...... at first he insisted tt I get the 0.1g scale....... WALAU!!! but........ thank God he finally agreed and said ok-la go for the 1g one la. So like this lor,....anyway, we wanna thank each of U for supporting,visiting...

Your baby is now nearly 5.5 inches/ 13 centimetres long from crown to rump and weighs approximately 5 ounces/ 140 grams. Her skeleton is mostly rubbery cartilage, which will harden later. A protective substance called myelin slowly begins to wrap around the spinal cord. With the help of a special stethoscope, you can now hear your baby's heartbeat. There's almost nothing more comforting or exciting than hearing your baby's heartbeat galloping along. Source/Link to Baby Centre [tags : darentiff tiff pregnant baby ]

Nathanael turns two years old today on 22 September 2006. Today is also Nathanael's fifth day in Hospital Kuala Lumpur for his Ketogenic Diet. So instead of eating Cakes and Yummy Food during his birthday, this time he will have to sacrifice and eat one of the Ketogenic Diet Meal Plans set for him. Nate: U didnt wish me ler? Leave a comment lor We decorated the Ward a bit with balloons just to liven things up and to give everyone a cherry mood. Tks to mom-in-law who bought the ballons, party hat (on Nathanael in the pic above) and party stuff. Nate : Err .. how come we didnt invite the A&W Bear? This is Mah Mah (Grandma) showing love to Nathanael on his birthday. Nathanael got a cute little teddy bear and lots of love. Nate: Tks Yeh Yeh & Mah Mah I love you too .. so much! Kung Kung (Grandpa) holding Nathanael. Nathanael has this great ability to recognize when his grandparents carry him, cos he just simply manja (can't find an english word for manja) them so much. Lo...

This is a video taken on 21 September in HKL about an hour before Nathanael's birthday. He was really in an excited mood and mom had just prayed for him over the phone as he approaches his 2nd birthday. Enjoy this two minute video of Nathanael or Click Here to view it. [tags : darentiff nathanael ketones epilepsy seizures diet video ketogenic diet ]

Hey ..... check out my new CRIB! They have moved me from Bed27 to Bed6. Well the three Beds around Bed27 were the "acute areas" where the nurses have to monitor the progress of the children at all times. Now ... my sugar level is ok (cos they feeding me good!) and my ketosis level seems pretty ok. So they have moved me to Bed6. Today : Sugar Level = 3+ Ketone Level = 2-3 Yummy French Fries!! Yups Me no kidding. My dietian Puan Mariam gave me 5 wedges today! Yahoo! This is one kinda diet i LOVE!! See how excited i am biting and chewing on the French Fries! Ketogenic Diet ROCKS!! In my lunch meal plan, i have 3 types of food. 1. Two Tablespoon of Rice (i wonder who they think they are feeding, babies or what? 2 Tablespoon only ah.... where got enuf!!) 2. Wedges. Yummy wedges. This is one thing that i can always have in my Meal Plans!! Yummmmmmy! 3. Porridge with Leafy Vegetables & Margarine. Hmmm the margarine kinda drowns all the taste of the porridge, but still rocks! Her...

In the late afternoon today, we also did another EEG (ElectroEncephaloGram) scan for Nathanael. (We think, this may be the fifth EEG he has done) Thankfully Nathanael was sleeping well, so they didnt need to sedate him. We carried him down from his Ward to the EEG room, the person in charge put up all the lines, and carried out his EEG tests. This is the computer that tracks the read out from the brain activity. It measures the signals in a form of curves. All these wires are put in strategic area around his head and also his chest. This is to measure the activity of brain neurons that's moving thru his brain. We won't get the results yet as it would take some time for them to study the graphs and all. [tags : darentiff nathanael ketogenic ketones epilepsy seizures diet ketogenic diet ]

Its Day 3 already in HKL. Here are three photos and a short summary of what happened today in HKL. Check out the bruises on his toes. This is how the nurses check on Nathanael's sugar level. They would poke one of the toes till it bleeds. Then put the blood onto a machine to determine the sugar level content in the blood. If it goes below 2, then its a big concern. Last nite, twice his sugar level went below 2. Nathanael was basically on a Water Fast for the entire day of Day2. And that would be the cause of his low sugar level. The doctor then gave him RCF Milk (Its a fat based, low carbo milk for Ketogenic patients) and after the second low reading, topped it up with Dextrose (which is a sugar content.) Later this early morning about 5ish-am, his sugar level was above 3. So that's good news lor. Nathanael was on the drip today, you can see the tube from his right arm. It goes to a bottle that's feeding him sugar straight into his blood stream, to ensure that his sugar lev...

Here's a brief Update on Nathanael during Nathanael's second evening in HKL Glucose Level threshold is 2.6--anything lower is like.....sitting at the edge of your seats! And if it goes down to 2.....wahlau!! On Tuesday night @ 10.15pm his glucose level went down to 1.9 Doc gave instructions to feed him milk and to check glucose (sugar level) in 1 hr 11.30pm - his glucose (sugar level) level went down to 1.6 (aiyoh!) and this had us worried. Doc was busy in another ward so sent word to feed him another 90cc of milk and repeat a glucose (sugar level) check in 1hr 12.45am - glucose level went up to 1.8 (..but still low below 2) 5.07am - glucose went back up to 2.5 (better but still below 2.6) and he passed urine not sure what was ketones reading. 7.59am - Urine Ketone test registered 2+ (we need to achieve 4+) Thanks for keeping him in prayers, I know U all are praying along with us. THANKS THANKS!!!! Cant express our gratitude!Gtg to hospital now. Update U guys later. [tags : da...

Well this continues from yesterday end of Day 1 and the first half of Day 2. Whilst Nathanael was fasting from food, the nurses kept taking reading on his blood sugar level, to ensure that it doesn't come down too much. Late night, yesterday, the nurses alerted the MO (Medical Officer) that his blood sugar was down to 2.3. They were a bit concerned, so the MO did the most practical thing, gave Nathanael some Dextrose (sugar substance) to bring up the sugar level. Well this morning during our consultation with his Doctor, Dr Choy, he felt that Dextrose should not been administered, cos that would upset the balance of sugar and carbo and protein in Nathanael. Anyway, this resulted in Nathanael having to fast one more day today. So he's on just water today, and will only start on the Ketogenic Diet tomorrow. Thankfully, with just surviving on water only, Nathanael is still responding well (see the video below) and still pretty active most of the time. So as u all know, Nathanael l...

Acrobat in the Crib This is how Nathanael ends up after moving in circles in the crib. Kicking and turning. We dunno why .. but he just loves to dangle his legs out of the Crib! :) hehehe New Style of Drinking Water Yups, this is the picture that could not come up on Day2. It finally came up on this post. Anyway, this is how we feed Nathanael water. We use a syringe and transfer the water from the bottle into his mouth. Otherwise our dear son would only drink Water mixed with Ribena!! Naughty naughty! Manja Grandparents See lah, he very clever to manja his grandparents. When Yeh Yeh & Mah Mah was here, he would slide up to them give them the pitiful face. ..... Carry me ... love me. ..... :) hehe Nathanael .. is one smart Boy! :) [tags : darentiff nathanael ketogenic ketones epilepsy seizures diet ketogenic diet ]

Today is the First Day for Nathanael in Hospital Kuala Lumpur (most of us know it as General Hospital Kuala Lumpur, but their real name is HKL). We arrived at the Pediatric Section at 9.45am. This is the Wad KK5. And KK aint Kota Kinabalu. Its most probably Kanak Kanak 5. This will be Nathanael's crib for the next two weeks. The nurses are nice, the "crib" real crib is quite big ... so he can roll around quite a bit. And you will see from the pics that he does get around on the bed. This is Nathanael in his CRIB of Ward KK5. The doctor took some blood from him. And she said, Nathanael is a nice name. And she gave us the Christian meaning of his name. We of coursed asked .. are u a Christian, and she said yes! :) God sent us his saints! We prayed.. cos from history, its quite hard to get blood from his hand, and she did it with only one try! God is on our side! :) Doctor left the needle in the hand, so as to facilitate the input of Glucouse in the event Nathanael needs it....

Update from inside the Womb Your baby is now about the size of an avocado (about 5 inches / 11.6 centimetres long from crown to rump and weighing approximately 4 ounces / 100 grams). In the next three weeks he'll go through a tremendous growth spurt, doubling his weight and adding inches to his length. In or out of the womb, babies are playful creatures. Yours may already have discovered his first toy -- the umbilical cord -- which he'll enjoy pulling and grabbing. Sometimes he may even clutch it so tight that less oxygen gets through, but don't worry -- he doesn't hold onto it long enough to harm himself. The circulatory system and urinary tract are in full working order, and he's inhaling and exhaling amniotic fluid through his lungs. Sometimes, when you move suddenly, you may a feel a slight pain in your sides. Ligaments on each side of your uterus and pelvic walls are stretching as your baby grows. Source/Link to Baby Centre [tags : darentiff tiff pregnant ba...

Nathanael went swimming yesterday with cousin Eunice & Ben in the Sutera Pool. Lots of fun pics taken together. We also did the Dolphin Challenge again, but alas that was in Nathanael's cousin's video, so can't show it here! But we did take quite a few pictures. Here are some of the nice ones taken yesterday in the pool. The water was cold.. but Nathanael braved it and enjoyed the time playing in the water. Nathanael on his own by the edge of the Pool. Look Ma, no Floats! Yay! Posing with my cousins Eunice & Ben Its Daddy and Me! Nathanael on the Kick Board and Really Happy from the looks of it! Eunice & Nathanael [tags : darentiff nathanael swimming ]

Tiff & mom brought Nathanael for his Hearing Assesment today. And we would like to share a Praise Report with you. After completing his tests, we were told that Nathanael's Right Ear can now hear at 25db. The audiologist reminded us that the last time we came, Nathanael's Right Ear could only hear 50db and above. This is an amazing improvement and we wanna Thank God for touching Nathanael and for improving his hearing abilities. Keep on praying for Miracles!! What does 25 db means? According to the Audiologist, at 25db, his Right Ear hearing is near normal . Audiogram Hearing Assessment Indicator (Click to view ASHA site) If hearing falls in the -10dB to 15 dB range, your hearing lies in the normal range. If hearing falls in the 16 dB to 25dB range, you have a slight/minimal loss. If hearing falls in the 31dB to 51dB range, you have a moderate loss. If hearing falls in the 91dB and above range, you have a profound loss. [tags : darentiff nathanael hearing assessment ]

We believe that Nathanael is just blessed with so much love all around. From all our family and relatives and friends. We've always seen your love, care, concern and prayers for Nathanael. We continue to thank you sincerely from our hearts and we urge you to keep praying with us each day for a miracle to breakthrough in Nathanael's life. Today we wanna share some LOVE that overwhelms us, which overflows out of their hearts to Nathanael. Nathanael is blessed with his grandparents Yeh Yeh & Mah Mah (Arthur & Mary) Kung Kung & Po Po (Michael & Linda) We believe the prayers of our grandparents are amazing. Our grandparents are so much wiser and full of insights and with a myriad of experiences that most of us would hardly have ever encountered to date. They are also extremely patient and tender and yet so sacrifically giving in all their ways. :) Today's tribute is to Nathanael's Yeh Yeh, Mah Mah, Kung Kung, Po Po. Thank you for all your love, your sacrifici...